Chesed

I walked into PICU room 5 and was so surprised to see Liam awake and coherent! They’d told us that after such a long surgery they sometimes send them to…

I didn’t sleep much that night. The snow. The questions. The adrenaline. It all rolled together into restlessness. The snow outside was beautiful even if we knew it posed a…

Strange the way it feels like the last days and simultaneously like the beginning. A lot of events in life are like that. Some of them happy events …this was…

On Monday Liam was sitting at the kitchen table when Adam glanced down at his leg. “Dude, your tumor is huge.” I looked and sucked in my gut. It’s obvious…

We celebrated Christmas early. I wanted to celebrate in our own home. Plus, not knowing how much pain Liam would be in or even if we would be discharged in…

Every admission comes with it’s own pieces of good and hard. This is methotrexate one of cycle three. Liam experiences significant anticipatory nausea. We’ve developed a lot of strategies to…

God of all my days Days of chemo Days of darkness and fear Days of hope and promise Days of challenge and obstacles Days of travel, doctor’s appointments, painful therapy…

We had been so incredibly careful in the days leading up to Thanksgiving because we so much wanted to be with David’s family for the holiday. In the end, the…

The morning after that horrible X-ray on July 29 I realized I was singing, “Light of the world, you stepped out into darkness. Open my eyes let me see.” That…

Today, Friday, was our appointment with Dr. Healey. He came in and introduced himself, sat down and chatted with Liam about what he enjoys doing and what he did before…