Zara baby
Zara is scheduled to follow up with her neurologist tomorrow. Because her spasms were lessening significantly in frequency we were hoping we might be able to cancel follow up. Then…
Read moreZara’s Visit with Neurology
Today it’s been two weeks since Zara had her follow up appointment with the neurologist as Johns Hopkins. It is difficult to put into words just how relieved we feel…
Read moreTen Months
Ten months of time with this precious baby girl. Ten months of hugs and kisses, nights on the recliner, baby smiles, hours of blissful rocking, and splashing in the bathtub. Ten…
Read moreBecause God is always good
{If you’re subscribed here via email you probably found a few old posts popping up in your inbox. I finally finished up a few posts I’d started after the kitchen…
Read moreHow is Zara?
It’s the question of the week and one I really don’t know how to answer. Physically: She seems to be doing well. She just started crawling a week prior to…
Read moreZara is being discharged!
Zara got hooked up to a continuous EEG with video monitoring Saturday night at bedtime. She absolutely hates the process of being hooked up. They scrub her scalp where the…
Read moreWhen seizures change your world
Zara’s world has been turned upside down. About the time she turned six months old she started doing a very odd head nodding spasm while nursing to sleep. I googled…
Read moreThree Months
She’s a sugar lump. Darling. Angel child. There aren’t enough sweet words to describe her. She’s quietly snuggling into our family. She hardly ever cries (probably because we love to…
Read moreNewborn Normals
{3 weeks . photo credit: Christy} I think we’re finally settling into a bit of a new normal now that Zara is five weeks old. Her normal seems to change…
Read moreIt’s a girl!
It’s been a week and we are still marveling over the wonder of her. She’s a darling, darling lump of sugar; but best of all, she is here. She is…
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