Miracles Still Happen
We are absolutely thrilled.
Zara sailed through her MRI with no adverse results to the general anesthesia or the contrast dye.
But even better? Her MRI was completely clear!
Some days I still can hardly believe it. Her reflexes are completely symmetrical and aside from some low muscle tone issues, she’s checking out completely on target.
They really have no answers for what exactly was going on or why it happened. In their minds it was simply stereotypies (pronounced “stare ee ot u peez”) which is a muscular movement that looks like a seizure but isn’t. It sounds like one of those ambiguous syndrome type terms doctors use when they have no idea what is going on but they can’t find anything specific. 😉 At any rate, kids usually grow out of them and they are completely benign. They have no idea what causes them or what makes them eventually go away.
Maybe it’s true.
But I still wonder. Would stereotypies have caused a child to stop rolling? And even more, would they have caused a child to start fisting with her left hand so much so that she would crawl into a room, plop that fisted hand in her lap and play with the other? Would they have made her weak on her left side and caused increased reflexes on that side? Would they have made her need to learn that her left side is there when she was learning to walk or playing with her hands when she previously had no issues?
We’ll never know. But I think she had more than stereotypies going on and God healed her. Then again, I’m just the mom with a boatload of faith; not the one with the neurology degree.
It really doesn’t matter. Because either way, we get to stop worrying about what’s going on inside her little cranium!
No matter what happened, I knew I would still know God is good. We had a lot of dialogue going on, He and I, in the days leading up to Zara’s last checkup. So many questions. So many emotions to give to Him. Today I am overflowing with so much thankfulness for this miraculous gift of health He has given our baby girl!
I would also like to give a huge shout out to the team at Johns Hopkins for the incredible treatment we received from the day I first called them to the day they said we could follow up with her pediatrician. The hospital is absolutely eNORmous, but we were always treated with the utmost courtesy and respect from people who showed us which direction to go (and often took us part or all of the way there) to neurologists who called or emailed us directly. I loved that at her follow ups the neurologist herself was the person to come out to the waiting room to get us. It felt so personable to see doctors come out and greet their patients and chat with them for a minute. I also loved that anesthesia let me go with Zara while they put her to sleep. Zara was super stressed the day of her MRI (she has white coat syndrome all the way by now). Not only did anesthesia offer to premedicate her, she insisted the nurse let me administer the medication rather than make Zara even more upset. And then they let me walk her back to the room and hold her while they put her to sleep. A quick kiss and I was out the door so they could intubate her. Only a few minutes and I’m sure Zara wouldn’t have remembered them forever but I know she would have been TERRIFIED to be taken from me and I would have cried my eyes out to watch it happen. I love that modern medicine has made such enormous strides toward finding cures for so many things; and I am equally happy that medical practitioners have made such enormous strides in taking care of patients and family’s emotional needs. Johns Hopkins, you are pretty amazing!
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The Great Physician! I’m so thrilled to join you in praising His Name!
And the pictures?–DARLING.
Truly awesome! Praising God with you…. And I just have to comment on Liam’s healing as well in being able to tolerate more foods. So Exciting! You are watching God work all around, sounds like!
Thank you, Jesus! Rejoicing with you all!
So thankful to hear this! We were at your in-laws the morning David called to give an update but i didn’t want to ask questions. And I’ve been wondering ever since.
She’s precious – and perfect.
God is good, all the time! Praising Him with you!!
Praising the Lord with you at His healing in your little girls life, and also at the caring medical wisdom at Johns Hopkins…we are so Blessed! 🙂
So, so happy for all of you! I’ve been following Zara’s story because of our families own experience with Pediatric Neurology and Neurosurgery. Our daughter was 10 when a bacterial infection ate away the muscles and ligaments that give support to the top two vertebra bones. Though the long journey of diagnosis and then the day of the surgery; God was their in a real and powerful way. She has no weakness or numbness, which her surgeons say is amazing! Waiting while your child is having an MRI of their brain is the worst kind of waiting, ever. The day of our daughters surgery was a much easier wait then the wait for the MRI to check if her neck stiffness has a neurological cause. Zara’s story is a reminder to me again to hold my children with open hands. They are God’s and He is their perfect protector.
What an amazing God we have! So happy and relieved for you.
So happy to hear a good report! Adorable pictures too!
no words. tears. just so, so happy for you!
I’m so happy all over again!!! So thankful that God healed Zara and that He faithfully walked with you and gave you strength for this trial.
Zara is so darling and the pictures are beautiful.
I’m so happy for your good news!!! That’s such an answer to prayer! And thanks too, for acknowledging those in healthcare who care. I get so tired of seeing articles in my FB feed of how everyone “out there in the medical field” is just out for your money and they don’t care about us. So not true.
Praise the Lord for His healing on Zara. Thanks for your great testimony of God’s great power and sharing your joys with us.
This is so exciting and a real answer to prayer! God has given a special gift x2. At birth and now with her being healed! Hallelujah!!! Darling photos of Zara!
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