Chesed

Thursday June 16, 2011

I can sum up those two tablespoons of milk in one word:

flatulence

So while it’s not exactly a rip roaring success judging by the level of appreciation I had for open windows and his level of, well, odorous noises …. a little bloating and lots of gas is a huge improvement from diarrhea and sleeplessness after trace amounts.

Maybe in a few years.  Meanwhile, what AM I supposed to give him for milk??  We are down to no options until the goat milk trial is over.  His knee pain yesterday is making me hope the two are unrelated, but it’s not a totally fair trial because of the re-introduction of cows milk.  

What would you do if your three year old complained of that much knee pain?  Keep looking for zebras when the big, likely things have been ruled out or ignore it?

17 thoughts on “Thursday June 16, 2011

  1. down_onthefarm

    and now. for the serious business of food allergies…first i need to say that you have worked so.hard. you have been amazing. it pinches my insides as a mom when i read of how much pain you’ve had to see your child suffer without answers. and oh the energy consumed with a trial and error process. just hoping with you and for you that if there’s a zebra? it’ll be revealed. in spite of it’s camoflauging stripes! and soon.

  2. r4valilswitz

    I always think if you when i see recipes that seem like they might work, I saw this note about a recipe in the “letter to the editors” section. this lady was thanking them for a Soda Bread Recipe Soda Bread Recipe
    and then she listed what she did to make it work for her son,who is yeast, dairy & Gluten restricted “”””I used Bob’s Red Mill flour blend and added 1 1/2 teaspoon of xanthan gum. Than I made a dairy free buttermilk substitution by putting 1 1/2 tablespoon vinegar in a glass measuring cup, adding cocoanut milk to fill to the 1 1/2 cup mark, and let stand for 5 min. i baked the bread in a glass pan, adjusting the time to 60 min. my son loved it!””””

    I know this probly won’t work for you but I wanted to at least share it in case it had some tip that could help you:))

    Have you seen this? http://www.organicvalley.coop/products/milk/lactose-free/

    I was also wondering if liam could take a digestive aid of some kind before drinking milk to help with the gas? my uncle use to do that before he ate icecream. have a great day!!

    Just a teeny weeny side note:) It might just be my computer but i have a really hard time seeing any of the gray writing for buttons on your page;))

  3. mlt10202002

    loud laughter here!
    but i am so sorry the experiment was not a rip roaring success in the way you had hoped it would be.

    milk options??? i have no idea. what is the status of coconut in his diet? i don’t remember.

  4. smilesbymiles

    @down_onthefarm – @writersblock02 –  Y’alls puns cracked me up!!! I love puns!
    @totallycherished –  Can I just tell you how much I LOVE seeing around in bloggy land again? I missed you!
    @r4valilswitz –  The reason I’m not going to push milk w/ a digestive aid is that Diane Craft (I referred to her in the first post of this series) has documented so many links to learning disabilities. So while it may feel like it’s an easy route now, we could pay in the long run. I want him to have every chance possible at school. And since I saw such an ENORMOUS change in his ability to listen to a story back when this all started I am not taking any chances. He will get milk when his body digests it well on its own.
    @mlt10202002 –  I forgot to mention coconut in the last post … I knew I’d forget something. He didn’t do coconut milk at all. He does handle coconut oil, otherwise I avoid it. I do think I could try almond milk again? Maybe??
    @happyangel78 –  AWESOME!! It looks like an option! Does it taste like milk?

  5. VirginiaDawn

    I have been reading about fermented foods and GAPS and Specified Carbohydrate Diet. I have thought of you. It is no answer to the question at hand, but I wonder of you have ever looked at it. If so, what did/do you think. I have found so many stories of people that have truly healed from allergies like Liam and George.  A friend did a version of it and her son’s autism has improved (a little) and his allergy list is a little better, but she has never really applied herself to is.

  6. smilesbymiles

    @VirginiaDawn –  I have not “applied myself” even to reading about it much. The little bit of the GAPS theory I’ve heard makes sense. I really need to read more. Why does that sound like THE MOST boring reading material to me right now? Oh, wait. I bet it’s b/c I’m scared I’ll feel compelled to work that much harder. But a friend on fb just suggested the same thing and since I feel very doubtful about the help we’re going to get at the allergist office, I should go learn.

  7. happyangel78

    @smilesbymiles – I believe the taste is very similar to milk, don’t think I’ve ever tried it by itself, just in cereal, baking etc.  My daughter liked it much better than the other milks we tried-soy, rice etc.  I’m sure they would send you a sample if you called & asked, I think some of my friends did that.  If you lived closer I’d give you some to try. 🙂

  8. happyangel78

    @VirginiaDawn – My daughter has autism & we’ve seen HUGE improvements since she is off gluten/dairy/eggs/soy.  Her aggression has left totally, no constipation, she started talking-I could go on & on.  I strongly encourage anyone that has a child with autism to try the diet (& no cheating) for 2-3 months, it’s def. worth all the work.  I know a lot of parents that have done the specific carb diet & seen even great results.  I may go that route someday but haven’t felt led to at this point since we are still seeing great progress in her development & skills.

  9. VirginiaDawn

    @smilesbymiles – Truthfully, I found it to be facsinating reading material. Maybe that is bc I really want to find something. Maybe it is bc it just makes so much sense in my intuition for us right now. Maybe i am just wierd. Any of those is quite possible. 😀

  10. scuppernog

    “Fluffers” is what we named flatulence, it’s been in abundance this past week as a result of a   little guys digestive system trying to sort itself out after food poisoning (supposedly).  He had severe joint pain in his hands within a short time after taking his meds, I won’t be giving it to him again, it was terrible. 

    As for milk I’m not sure what all he can handle, but know my aunt uses almond milk.

  11. flowergirl_5

    I can not imagine all the time and agony you have gone thru trying to figure out what to do next—Our son was prob about 3 or 4 when he had awful knee pain after quite a bit of doctoring and to make a long story short his one knee turned in a little which caused the pain and after doing a round of theraphy he seemed to be fine!!

  12. elainef

    My sympathies. I have done the cfgf diet with my daughter who has autism a few years ago. I know how hard it can be. The diet did nothing for her so we discontinued. cfgf kids has alot of subsitutes for things. Have you ever visited a gastrologists? You might actually get more answers there. They can do alot more tests..in a way, than an allergist. Sometimes biopsies are actually more telling according to my husbands gastrologist.

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